Publications

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Displaying 1 through 29 of 29 publications.

Romano (DeMuro) C, Bratlee-Whhitaker E, Hartry A, Mearns E, Taylor J, Taylor G, Callahan L, Monks D, Kremer I, Lappin D, Frangiosa T, Sangodkar S, Herring WL, Gnanasakthy K, Goss D, McLeod L, Edwards T, Poulos C, DiBenedetti D, Paulsen R. Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most quantitative research development. Poster presented at the Alzheimer's Association International Conference (AAIC) 2024; July 31, 2024. Philadelphia, PA.

Gaudiani L, Sikirica S, Hardin MB, Ervin CM, Goss DS, Kosa KM, Gopinathan S. Patient-reported burden of disease in diabetic peripheral neuropathic pain: learnings from in-depth patient interviews, sub-study of RELIEF-DPN 1. Poster presented at the American Diabetes Association's 84th Scientific Sessions; June 21, 2024. Orlando, FL. [abstract] Diabetes. 2024 Jun; 73(Suppl 1):484.

Bali V, Schelfhout J, Sher MR, Tripathi Peters A, Patel GB, Mayorga M, Goss D, Romano (DeMuro) C. Patient-reported experiences with refractory or unexplained chronic cough: a qualitative analysis. Ther Adv Respir Dis. 2024 Mar 19;18:175346662. doi: 10.1177/17534666241236025

Williams V, Romano (DeMuro) C, Clark M, Korver D, Williams N, Goss D, Naujoks C, Marvel J. Psychometric evaluation of an electronic Asthma Symptom Diary for young children. J Patient Rep Outcomes. 2023 Oct 30;7(1):105. doi: 10.1186/s41687-023-00647-y

Danese D, Goss D, Romano (DeMuro) C, Gupta C. Qualitative assessment of the patient experience of primary hyperoxaluria type 1: an observational study. BMC Nephrol. 2023 Oct 26;24(1):319. doi: 10.1186/s12882-023-03365-1

Romano (DeMuro) C, Bratlee-Whitaker E, Herring WL, Callahan L, Raimundo K, Taylor J, Taylor G, Kremer I, Lappin D, Frangiosa T, Gnanasakthy K, Goss D, Paulsen R, Hartry A, DiBenedetti D. Measuring what matters most to people living with Alzheimer's disease and care partners: what matters most qualitative research. Poster presented at the 16th Clinical Trials on Alzheimer's Disease (CTAD); October 24, 2023. Boston, MA.

Romano CD, Slota C, Bratlee-Whitaker E, Edwards T, Herring WL, McLeod L, Callahan L, Bullok K, Raimundo K, Taylor J, Taylor G, Kremer I, Monks D, Lappin D, Frangiosa T, Gnanasakthy K, Goss D, Comer M, Paulsen R, Hartry A, DiBenedetti D. Measuring "What Matters Most™" to individuals living with Alzheimer's disease and care partners: a conceptual model of Alzheimer's disease. Poster presented at the AAIC 2023 Conference; July 16, 2023. Amsterdam, Netherlands.

Gerbasi ME, Goss D, Petrillo J, Nejati M, Lewis S. Patient experiences in essential tremor: mapping functional impacts to existing measures using qualitative research. Poster presented at the 2023 International Congress of Parkinson's Disease and Movement Disorders; August 27, 2023. Copenhagen, Denmark. [abstract] Mov Disord. 2023; 38(Suppl 1).

Williams V, Romano (DeMuro) C, Clark M, Goss D, Naujoks C, Marvel J. Psychometric evaluation of a new electronic pediatric asthma symptom diary. Poster presented at the ISPOR Europe 2022; November 8, 2022. Vienna, Austria. [abstract] Value Health. 2022 Dec 1; 25(12):S428. doi: 10.1016/j.jval.2022.09.2130

Darden C, Price M, Ray D, Goldstein G, Goss D, Bennett L, Garbinsky D, Thota R. Patients' satisfaction with long-acting injectable somatostatin analog therapy for neuroendocrine tumors. J Patient Rep Outcomes. 2021 Sep 7;5(1):82. doi: 10.1186/s41687-021-00355-5

Darden C, Ray D, Goldstein G, Goss D, Garbinsky D, Bennett L, Price M, Thota R. Satisfaction survey of administration modes for Long-Acting (LA) Somatostatin Analog (SSA) therapy in patients with Neuroendocrine Tumors (NETS). Poster presented at the 2019 North American Neuroendocrine Tumor Society (NANETS) Conference; October 3, 2019. Boston, MA.

Darden C, Ray D, Goldstein G, Goss D, Price M, Thota R. Satisfaction survey of administration modes for long-acting somatostatin analog therapy in patients with neuroendocrine tumors: results of cognitive interviews with US-based patients and nurses. Poster presented at the 2019 European Neuroendocrine Tumor Society Annual Conference; March 6, 2019. Barcelona, Spain.

White MV, Hogue SL, Odom D, Cooney D, Bartsch J, Goss D, Hollis K, Herrem C, Silvia S. Anaphylaxis in schools: results of the EPIPEN4SCHOOLS survey combined analysis. Pediatr Allergy Immunol Pulmonol. 2016 Sep;29(3):149-54. doi: 10.1089/ped.2016.0675

White MV, Silvia S, Hollis K, Goss D, Odom D, Bartsch J, Hogue SL. EPIPEN4SCHOOLS® survey combined analysis: prevalence and triggers of anaphylactic events. Poster presented at the NASN 2016 48th Annual Conference; June 30, 2016. Indianapolis, IN. Previously presented at the 2016 AAAAI Annual Meeting.

Hogue SL, Goss D, Hollis K, Silvia S, White MV. Training and administration of epinephrine auto-injectors for anaphylaxis treatment in US schools: results from the EpiPen4Schools® pilot survey. J Asthma Allergy. 2016 Jun 17;9:109-15. doi: 10.2147/JAA.S106567

White MV, Goss D, Hollis K, Millar K, Silvia S, Siegel PH, Bennett ME, Wooddell MJ, Hogue SL. Anaphylaxis triggers and treatments by grade level and staff training: findings from the EPIPEN4SCHOOLS pilot survey. Pediatr Allergy Immunol Pulmonol. 2016 Jun 16;29(2):80-5. doi: 10.1089/ped.2015.0614

Hogue SL, Silvia S, Hollis K, Goss D, Odom D, Cooney D, White MV. EPIPEN4SCHOOLS® survey combined analysis: staff training and use of epinephrine auto-injectors. Poster presented at the 2016 AMCP Managed Care & Specialty Pharmacy Annual Meeting; April 19, 2016. San Francisco, CA. [abstract] J Manag Care Pharm. 2016 Apr; 22(4-a):S116. Previously presented at the 2016 ACAAI Conference.

Hogue SL, Silvia S, Hollis K, Wooddell MJ, Goss D, Odom D, Cooney D, White MV. EPIPEN4SCHOOLS® survey combined analysis: staff training and use of epinephrine auto-injectors. Poster presented at the 2016 ACAAI Conference; March 4, 2016. Los Angeles, CA.

White MV, Silvia S, Hollis K, Wooddell M, Goss D, Odom D, Cooney D, Bartsch J, Hogue S. EPIPEN4SCHOOLS® survey combined analysis: prevalence and triggers of anaphylactic events. Poster presented at the 2016 AAAAI Annual Meeting; March 4, 2016. Los Angeles, CA. [abstract] J Allergy Clin Immunol. 2016; 137:AB52.

White MV, Goss D, Silvia S, Wooddell M, Hogue S. EpiPen4Schools® survey: characteristics of anaphylaxis and common triggers. Poster presented at the 2015 FAAIS Annual Meeting; July 17, 2015. Orlando, FL. Previously presented at the 2015 AAAAI Annual Meeting.

Silvia S, Goss D, Wooddell M, Hogue S, White MV. Epinephrine administration for cases of anaphylaxis in a US school setting: results from the EpiPen4Schools® survey. Poster presented at the 2015 FAAIS Annual Meeting; July 17, 2015. Orlando, FL. Previously presented at the 2015 AAAAI Annual Meeting.

White MV, Hogue SL, Bennett ME, Goss D, Millar K, Hollis K, Siegel PH, Wolf RA, Wooddell M, Silvia S. EpiPen4Schools pilot survey: occurrence of anaphylaxis, triggers, and epinephrine administration in a U.S. school setting. Allergy Asthma Proc. 2015 Jul;36(4):306-12. doi: 10.2500/aap.2015.36.3859

Hogue SL, Bennett ME, Goss DS, Hollis KA, Millar K, Silvia S, Siegel P, Wolf R, Wooddell M, White MV. Availability and use of epinephrine auto-injectors for the treatment of anaphylaxis: results from the EpiPen4Schools® survey. Poster presented at the 2015 ISPOR 20th Annual International Meeting; May 2015. Philadelphia, PA. [abstract] Value Health. 2015 May; 18(3):A178. doi: 10.1016/j.jval.2015.03.1030

Wooddell M, Goss DS, Hollis KA, Millar K, Silvia S, Siegel P, Bennett ME, Wolf RA, Hogue SL, White MV. Epinephrine administration for cases of anaphylaxis in a US school setting: results from the EpiPen4Schools survey. Poster presented at the 2015 AAAAI Annual Meeting; February 20, 2015. Houston, TX. [abstract] J Allergy Clin Immunol. 2015 Feb; 135(2):AB212.

White MV, Goss D, Hollis K, Millar K, Silvia S, Siegel P, Bennett ME, Wolf RA, Wooddell M, Hogue S. EpiPen4Schools® survey: characteristics of anaphylaxis and common triggers. Poster presented at the 2015 AAAAI Annual Meeting; February 15, 2015. Houston, TX. [abstract] J Allergy Clin Immunol. 2015 Feb; 135(Suppl 2):AB212.

Hogue SL, Bennett ME, Goss DS, Hollis KA, Millar K, Silvia S, Siegel P, Wolf RA, Wooddell M, White MV. Occurrence of anaphylaxis by school grade level and staff training: findings from the EpiPen4Schools survey. Poster presented at the 2015 AAAAI Annual Meeting; February 23, 2015. Houston, TX. [abstract] J Allergy Clin Immunol. 2015; 135(2):AB212.

White MV, Goss DS, Hollis KA, Millar K, Silvia S, Siegel P, Bennett ME, Wolf RA, Wooddell M, Hogue SL. EpiPen4Schools survey: characteristics of anaphylaxis and common triggers. Poster presented at the 2015 AAAAI Annual Meeting; February 2015. Houston, TX. [abstract] J Allergy Clin Immunol. 2015; 135:AB212.

Cook SF, Lanza L, Zhou X, Sweeney CT, Goss D, Hollis K, Mangel AW, Fehnel SE. Gastrointestinal side effects in chronic opioid users: results from a population-based survey. Aliment Pharmacol Ther. 2008 Jun 15;27(12):1224-32.

Cook SF, Bell TJ, Sweeney CT, Goss DS, Zhou X. Severity of constipation-associated gi symptoms related to opioid treatment in chronic pain patients: pac-sym questionnaire results from the opioid survey. Poster presented at the 26th Annual Scientific Meeting of the American Pain Society; May 2007.