Publications

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Displaying 1 through 50 of 187 publications.

Cope H, Fischer R, Heslop E, McNiff M, Johnson A, Camino E, Denger B, Armstrong N, Thakrar S, Bateman-House A, Beaverson KL, Woollacott IOC, Phillips D, Fernandez V, Ganot A, Donisa-Dreghici R, Mansfield C, Peay H. Clinician perspectives of gene therapy as a treatment option for Duchenne muscular dystrophy. J Neuromuscular Dis. 2024 Jul 29;11(5):1085-93. doi: 10.3233/JND-240033

Schapiro D, Perez-Nieves M, Vass CM, Ling Poon J, Gelsey FT, Pierce A, Mansfield C. Preferences of people with type 1 diabetes for features of weekly insulin. Poster presented at the American Diabetes Association's 84th Scientific Sessions; June 21, 2024. Orlando, FL. [abstract] Diabetes. 2024 Jun; 73(Suppl 1):831. doi: 10.2337/db24-831-P

Gelsey F, Perez-Nieves M, Vass CM, Ling Poon J, Schapiro D, Pierce A, Mansfield C. Preferences of people with type 2 diabetes for features of weekly insulin. Poster presented at the American Diabetes Association's 84th Scientific Sessions; June 21, 2024. Orlando, FL. [abstract] Diabetes. 2024 Jun; 73(Suppl 1):832. doi: 10.2337/db24-832-P

Ravelo A, Myers K, Brumble R, Bussberg C, Koffman B, Manzoor BS, Biondo JML, Mansfield C. Patient preferences for chronic lymphocytic leukemia treatments: a discrete-choice experiment. Future Oncol. 2024 May 22;1-12. doi: 10.1080/14796694.2024.2348440

Mansfield C, Boeri M, Coulter J, Baranowski E, Sparks S, An Haack K, Hamed A. The value of knowing: preferences for genetic testing to diagnose rare muscle diseases. Orphanet J Rare Dis. 2024 Apr 22;19(1):173. doi: 10.1186/s13023-024-03160-7

Mansfield C, Ho KA, Pierce A, Vass C, Liu X, Boroojerdi B, Kiri S. Patient preferences for myasthenia gravis treatments: a discrete-choice experiment. Poster presented at the American Academy of Neurology (AAN) Annual Meeting 2024; April 2024. Denver, CO. [abstract] Neurology. 2024 Apr 9; 102(17 Supplement 1). doi: 10.1212/WNL.0000000000206306

Garcia VC, Mansfield C, Leach C, Pierce A, Smith JC, Afonso M. Patient and caregiver preferences for hemophilia treatments: a discrete-choice experiment. Haemophilia. 2024 Mar;30(2):375-87. doi: 10.1111/hae.14928

Ho KA, Pierce A, Stoltenberg M, Tarancon T, Mansfield C. Eliciting exploratory patient preference data: a case study in a rare disease. Pharmaceut Med. 2024 Jan;38(1):55-62. doi: 10.1007/s40290-023-00509-4.

Ho KA, Pierce A, Stoltenberg M, Tarancon T, Mansfield C. Collecting exploratory patient preference data using an efficient approach: an example in rare diseases. Poster presented at the ISPOR Europe 2023; November 13, 2023. Copenhagen, Denmark. [abstract] Value Health. 2023 Dec; 26(12 Supplement):S466. doi: 10.1016/j.jval.2023.09.2526

Kwatra SG, Lio P, Weidinger S, Calimlim B, Ladizinski B, Vigna N, Botha W, Mansfield C. Patient preferences for atopic dermatitis treatments: a discrete choice experiment. J Dermatolog Trea. 2023 Dec 1;34(1):2222201. doi: 10.1080/09546634.2023.2222201

Janssen E, Smith IP, Liu X, Pierce A, Huang Q, Kalsekar I, Vachani A, Mansfield C. Patient preferences for lung cancer interception therapy. JAMA Netw Open. 2023 Nov 1;6(11):e2342681. doi: 10.1001/jamanetworkopen.2023.42681

Liu X, Smith I, Pierce A, Janssen E, Mansfield C. Can monetary risk preference explain health behavior and health preference? Poster presented at the SMDM 45th Annual North American Meeting; October 22, 2023. Philadelphia, PA.

Li D, Tan A, Hernandez S, Reilly N, Bussberg CJ, Mansfield C. Patient preferences for unresectable hepatocellular carcinoma (HCC) treatments. Poster presented at the 20th Annual International Society of Gastrointestinal Oncology; October 13, 2023. Tempe, AZ. Previously presented at the ESMO 24th World Congress on Gastrointestinal Cancer 2022.

Serbin M, Marras C, Mansfield C, Leach C, Yonan C, Sheehan M, Donnelly A, Klepitskaya O. Patients' preferences for adjunctive parkinson's disease treatments: a discrete-choice experiment. Patient Prefer Adherence. 2023 Sep 13;2023(17):2263-77. doi: 10.2147/PPA.S420051

Gilsenan AW, Hammad TA, Juhaeri J, Mansfield C, Levitan BS. Weighting the benefits & risks: the science and methods of benefit-risk assessment in drug development. Presented at the 39th ICPE Annual Conference; August 23, 2023. Halifax, Canada. Previously presented at the 2022 ICPE Conference.

Stothers Rosenberg S, Ng X, Mansfield C, Poulos C, Peay H, Lee TH, Irony T, Ho M. Adaptation of the WOMAC for use in a patient preference study. Ther Innov Regul Sci. 2023 Jul;57(4):702-11. doi: 10.1007/s43441-023-00510-8

Poulos C, Mansfield C, Bussberg CJ, Hicks JC, Downey C. Advancing equity, diversity, inclusion, and belonging in patient centered drug development with patient preference research. Poster presented at the ISPOR 2023 Conference; May 7, 2023. Boston, MA. [abstract] Value Health. 2023 Jun; 26(6 supplement):S359. doi: 10.1016/j.jval.2023.03.2791

Janssen E, Smith I, Liu X, Mansfield C, Pierce A, Huang Q, Kalsekar I. Patient preferences for lung cancer interception therapy. Poster presented at the ISPOR 2023 Conference; May 7, 2023. Boston, MA. [abstract] Value Health. 2023 Jun; 26(6 supplement):S343. doi: 10.1016/j.jval.2023.03.1943

Silverberg JI, Gooderham M, Thyssen JP, Pink AE, Mansfield C, Lee W-J, Zhang S, Platt AM, Calimlim BM, Wollenberg A. Patient satisfaction with treatments for moderate-to-severe atopic dermatitis according to degree and speed of skin and itch improvements: results from a patient survey in the United States. Poster presented at The 5th Annual Revolutionizing Atopic Dermatitis Conference (RAD 2023); April 29, 2023. Washington, DC.

Mansfield C, Nalysnyk L, Joshi D, Coulter J, Pulikottil-Jacob R. Impact of potential symptoms and risks associated with acid sphingomyelinase deficiency on patients and caregivers: a best-worst scaling study. Patient Prefer Adherence. 2023 Mar 30;17:927-39. doi: 10.2147/PPA.S381371

Li D, Tan R, Hernandez S, Reilly N, Bussberg C, Mansfield C. Patient preferences for unresectable hepatocellular carcinoma treatments: a discrete-choice experiment. Cancers. 2023 Feb 25;15(5):1470. doi: 10.3390/cancers15051470

Mansfield C, Botha W, Vondeling GT, Klein K, Wang K, Singh J, Hackshaw MD. Patient preferences for features of HER2-targeted treatment of advanced or metastatic breast cancer: a discrete-choice experiment study. Breast Cancer. 2023 Jan;30(1):23-35. doi: 10.1007/s12282-022-01394-6

Ravelo A, Myers K, Brumble R, Bussberg C, Koffman B, Manzoor BS, Biondo J, Mansfield C. Understanding patient preferences for chronic lymphocytic leukemia treatments. Poster presented at the 64th ASH Annual Meeting and Exposition; December 12, 2022. New Orleans, LA.

Cano V, Mansfield C, Pierce A, Leach C, Smith JC, DasMahapatra P, Bartelt-Hofer J. Patients with hemophilia and their caregivers prefer treatment attributes that enable a more active lifestyle with lower risk of inhibitor development. Poster presented at the 64th ASH Annual Meeting and Exposition; December 11, 2022. New Orleans, LA.

Li D, Tan A, Hernandez S, Reilly N, Bussberg C, Mansfield C. Predicting treatment choices for unresectable hepatocellular carcinoma (HCC): results from a patient preference study. Poster presented at the AASLD 2022 The Liver Meeting; November 4, 2022. Washington, DC. [abstract] Hepatology. 2022 Oct 21; 76(S1):S1312. doi: 10.1002/hep.32697

Mansfield C, Bullok K, Fuhs JV, Tockhorn-Heidenreich A, Andrews JS, DiBenedetti D, Matthews BR, Darling JC, Sutphin J, Hauber B. The patient voice: exploring treatment preferences in participants with mild cognitive concerns to inform regulatory decision making. Patient. 2022 Sep;15(5):551-64. doi: 10.1007/s40271-022-00576-w

Serbin M, Mansfield C, Leach CA, Yonan C, Klepitskaya O, Sheehan M, Donnelly A. Do patients' experiences with side effects affect their preferences for adjunctive Parkinson's disease treatments? Poster presented at the 8th European Academy of Neurology Congress; June 25, 2022. Vienna, Austria. [abstract] Eur J Neurol. 2022 Jun; 29(Suppl 1):446.

Poulos C, Ng X, Mansfield C, Rosenberg S, Peay H, Lee J, Irony T, Ho M. Logical soundness in a discrete choice experiment study of benefit risk preferences. Presented at the ISPOR 2022 Conference; May 15, 2022. Washington, DC. [abstract] Value Health. 2022 Jun; 25(6 S1).

Li D, Tan A, Hernandez S, Reilly N, Bussberg CJ, Mansfield C. Patient preferences for unresectable hepatocellular carcinoma (HCC) treatments: balancing overall survival and quality of life. Poster presented at the ESMO 24th World Congress on Gastrointestinal Cancer 2022; June 2022. Barcelona, Spain. [abstract] Ann Oncol. 2022 Jun; 33(Suppl 4):s293.

Flythe JE, Forfang D, Gedney N, White DM, Wilkie C, Cavanaugh K, Harris RC, Unruh M, Squillaci G, West M, Mansfield C, Soloe CS, Treiman K, Wood D, Hurst FP, Neuland C, Saha A, Sheldon M, Tarver ME. Development of a patient preference survey for wearable kidney replacement therapy devices. Kidney360. 2022 May 5;3(7):1197-209. doi: 10.34067/KID.0001862022

Ogdie A, Myers K, Mansfield C, Tillett W, Nash P, Leach C, Nowell WB, Gavigan K, Zueger P, McDearmon-Blondell E, Walsh J. Experiences and treatment preferences in patients with psoriatic arthritis: a cross-sectional study in the ArthritisPower registry. Rheum Ther. 2022 Apr;9(2):735-51. doi: 10.1007/s40744-022-00436-x

Auclair D, Mansfield C, Fiala MA, Chari A, Cole CE, Kaufman JL, Orloff GJ, Siegel DS, Zonder JA, Mange B, Yesil J, Dalal M, Mikhael JR. Preferences and priorities for relapsed multiple myeloma treatments among patients and caregivers in the United States. Patient Prefer Adherence. 2022 Mar 1;2022(16):573-85. doi: 10.2147/PPA.S345906

Kwatra S, Lio P, Calimlim B, Ladizinski B, Davis J, Botha W, Mansfield C, Weidinger S. Patient preferences for features of systemic atopic dermatitis therapies: a discrete-choice experiment study. Presented at the 3rd Annual Revolutionizing Atopic Dermatitis (RAD) Virtual Conference; December 2021.

Sutphin J, DiSantostefano RL, Leach C, Hauber B, Mansfield C. Exploring decisional conflict with measures of numeracy and optimism in a stated preference survey. MDM Policy Pract. 2021 Nov 13;6(2):238146832. doi: 10.1177/23814683211058663

DiBenedetti D, Mansfield C, Myers K, Satram S, Reyes C. Understanding patient experiences with chronic Hepatitis B Virus (cHBV) and its treatments. Poster presented at the AASLD 2021 The Liver Meeting; November 12, 2021. Previously presented at the Virtual ISPOR 2021 Conference.

Walsh J, Myers K, Mansfield C, Tillett W, Nash P, Leach C, Nowell W, Gavigan K, Zueger P, McDearmon-Blondell E, Ogdie-Beatty A. Impact of treatment experience on patient preferences and disease burden in psoriatic arthritis: results from a rheumatology patient research registry. Poster presented at the 2021 Virtual ACR Convergence; November 8, 2021.

Serbin M, Mansfield C, Sheehan M, Donnelly A. Development of a patient survey on preferences for adjunctive parkinson's disease medications: results from pretest interviews. Poster presented at the 2021 OAAPN Statewide Conference; October 21, 2021. Columbus, OH. Previously presented at the AMCP Nexus 2021.

Ng X, Stothers S, Mansfield C, Poulos C, Peay H, Lee TS, Irony T, Ho M. Adaptation of the Western Ontario McMaster Universities (WOMAC) osteoarthritis index for use in a patient preference study to inform regulatory decision-making. Poster presented at the 2021 SMDM Virtual Annual Meeting; October 19, 2021.

Klepitskaya O, Serbin M, Sutphin J, Leach C, Mansfield C, Yonan C, Sheehan M, Donnelly A. Development of a patient survey on preferences for adjunctive parkinson's disease medications: results from pretest interviews. Poster presented at the AMCP Nexus 2021; October 18, 2021. [abstract] J Manag Care Pharm. 2021 Oct; 27(10-a):S8.

Ervin C, Mangalindan A, Shapouri S, Sutphin J, Mansfield C, Manzoor BS, Sail K, Dine J. What drives treatment preferences in CLL? Listening to the patient voice. Poster presented at the 2021 Virtual iwCLL International Workshop; September 17, 2021.

Serbin M, Sutphin J, Leach C, Mansfield C, Yonan C, Klepitskaya O, Sheehan M, Donnelly A. Evaluating patients' preferences for parkinson's disease treatments. Poster presented at the MDS Virtual Congress 2021; September 17, 2021. [abstract] Mov Disord. 2021 Sep; 36(S1).

Montgomery ET, Browne E, Atujuna M, Boeri M, Mansfield C, Sindelo S, Hartmann M, Ndwayana S, Bekker LG, Minnis A. Long-acting injection and implant preferences and trade-offs for HIV prevention among South African male youth. J Acquir Immune Defic Syndr. 2021 Jul 1;87(3):928-36. doi: 10.1097/QAI.0000000000002670

Ogdie A, Mansfield C, Myers K, Tillett W, Nash P, Leach C, Nowell WB, Gavigan K, Zueger P, McDearmon-Blondell E, Walsh JA. Real-world patient experience and treatment preferences in patients with psoriatic arthritis. Poster presented at the Virtual EULAR 2021 Congress; June 2, 2021. [abstract] Ann Rheum Dis. 2021 Jun; 80(Suppl 1):237. doi: 10.1136/annrheumdis-2021-eular.852

Mansfield C, Myers K, Klein K, Patel J, Nakasato A, Ling YL, Tarhini AA. Risk tolerance in adjuvant and metastatic melanoma settings: a patient perspective study using the threshold technique. Future Oncol. 2021 Jun;17(17):2151-67. doi: 10.2217/fon-2020-1193

Thach A, Sutphin J, Coulter J, Leach C, Pappert E, Mansfield C. Patient preferences for treating “OFF” episodes in parkinson's disease: a discrete choice experiment. Patient Prefer Adherence. 2021 Jun 1;2021(15):1187-96. doi: 10.2147/PPA.S301644

Ho M, Gonzalez JM, Mansfield C, Wilson L. Three preference studies sponsored by FDA CBER to inform benefit-risk assessment for biologics. Presented at the Virtual ISPOR 2021 Conference; May 20, 2021.

Peay HL, Fischer R, Mange B, Paquin RS, Smith EC, Sadosky A, Russo L, Ricotti V, Rensch C, Morris C, Martin AS, Ganot A, Beaverson K, Mansfield C. Patients' and caregivers' maximum acceptable risk of death for non-curative gene therapy to treat Duchenne muscular dystrophy. Mol Genet Genomic Med. 2021 May;9(5):e1664. doi: 10.1002/mgg3.1664

Mansfield C, Nalysnyk L, Joshi D, Coulter J, Pulikottil-Jacob R. Patient and parent preferences for symptom control in ASMD Type B and A/B using best-worst scaling methodology. Poster presented at the Virtual ISPOR 2021 Conference; May 2021. [abstract] Value Health. 2021 May; 24(5).

Dunne JL, Koralova A, Sutphin J, Bushman JS, Fontanals-Ciera B, Coulter JR, Hutton CT, Rewers MJ, Mansfield C. Parent and pediatrician preferences for Type 1 diabetes screening in the U.S. Diabetes Care. 2021 Feb;44(2):332-9. doi: 10.2337/dc20-0927

Serbin M, Sutphin J, Leach C, Mansfield C, Yonan C, Klepitskaya O, Sheehan M, Donnelly A. Evaluating patients' preferences for Parkinson's disease treatments. Poster presented at the 146th 2021 American Neurological Association (ANA) Virtual Meeting; October 17, 2021. [abstract] Ann Neurol. 2021; 90(S27):S151-2.